From Kayla’s Perspective #3

From Kim:
So many people contact us on a regular basis about how Kayla does certain things with her rare nerve disorder. Well, this past month was no exception. Kayla and I are writing our novels together, and she overheated a few weeks ago (which can be life-threatening.) But, I’m thankful to say that she is recovering well. She’s still really tired, but her sense of humor is still intact. She’s amazing. Here’s a little note from her perspective about the ups and downs of writing when you hit a speedbump:

From Kayla:
Once again, I learn how much of an adventure writing can be within the tight confines of life. (Especially when you have a rare nerve disorder and overheat at swim team.) {Smile.}

As you might’ve already guessed, life is a wee bit crazy at our house. You should have seen us when Holly lived here, but that’s another story.

Anyway, the fact is that when you overheat at swim team—when you’re not even working all that hard– things get a little bit strange. (Especially when you can’t feel pain and can’t tell your mom how it feels.)

Yes. I know this from experience. A few weeks ago this fascinating event happened. LOL Since then, we, my Mom and I, have been attempting to write while I try and get some rest. Again, LOL. But, it’s just a little weird trying to write when you’re tired, or in some cases even asleep. (I don’t suggest attempting the latter. Doesn’t work well.)

One thing’s for sure: when I overheat, I get really tired. Which means sleeping for eleven to fourteen hours at night and then taking a two-three hour nap that evening.
Like I said, I don’t sleep-write. Personally, I don’t really think anyone does. {Smile.} Although if I did, I would probably come up with some very interesting stories, don’t you think?

So I guess I’ll just stick to writing while I’m awake, if that’s okay. Jesus, writing and swimming, what a life. {Smile.}
-Kayla

Comments 2

  1. It is so interesting to hear what you feel when you are in a overheating situation etc. My son goes through similar but isn't able to verbalize what it feels like or what he goes through. It is like you give that part of his disease a voice when I read it. Thanks.

  2. Alison, very true. Kayla wrote an intense scene in the new fiction book coming out next March that shows what her character "feels" as she overheats. Which was an incredible experience for all of us – Kayla learned a lot through it – it was the first time ever she'd really been able to verbalize it. It was amazing.
    Kayla says hi!
    Kim

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